Diabetes Research use case
The Mayo Clinic has a research requirement where all diabetes patients are collected including all demographic, economic, or basically all private and public variables are analyzed to aid in the new diagnosis of patients. A viable and noble use case. Storing this information in a publicly accessible data store with open access to all information by anyone who would like to acquire the information IS NOT the right place for private information about a person's health.
International Human Rights
A right to privacy
Native American's(indigenous or aboriginal), Immigrants and minorities
An international soveriegnity rule applies to these populations - considering the majority of minority populations are far more likely to contract diabetes or life expectancy for these populations is far below the average life expentency with Russel Means (Lakota Challenge) indicating men live as few years as 42.9 years old.
An online protection priority
National - Healthcare.gov considerations
Medical Privacy Guide Laws related to medical records and children with parental relationship
Many of the laws related to children and consumers are not cited in the use case "current or future issues".
None of the laws which would exclude indigenous people, who have escalated their sovereignty to the united nations human rights justice process and we have not a single use case noted to exclude the tribal populations. In the use case for diabetes research, it is highly probable that the tribal population and fact that men with tribal heritage in Lakota Nations expect the males to not exceed 42.9 years of age due to diabetes related illnesses. Rights protecting health record of children1. See 45 C.F.R. Parts 160 and 164, available at http://www.hhs.gov/ocr/hipaa.
2. 45 C.F.R. § 164.501.3. 45 C.F.R. § 164.502(g); see also 65 Fed. Reg. 82,500 (Dec. 28, 2000).
4. The regulations do not define “unemancipated minor” but defer to state law definitions of the term.
5.See note at the bottom of the Alan Guttmacher Institute’s chart of relevant state laws, attached to this guide.
6. Again, the regulations do not define these terms but rely on state law definitions. 7. 45 C.F.R. § 160.103.8. 45 C.F.R. §§ 160.103, 164.504(e)(1).
9. 45 C.F.R. § 160.103.10. 45 C.F.R. §§ 160.103, 164.501.
11. 45 C.F.R. § 164.524.12. 45 C.F.R. §§ 164.502, 164.506, 164.508, 164.512, 164.514.
13. 45 C.F.R. §§ 164.510, 164.512.14. 45 C.F.R. § 164.522(b).
15. 45 C.F.R. § 164.522(a).16. 45 C.F.R. § 164.520.
17. 45 C.F.R. § 164.526.18. 45 C.F.R. § 164.528.
19. 45 C.F.R. § 164.502(g)(3)(i).20 See also A. English et al., State Minor Consent Laws: A Summary, 2nd ed. Chapel Hill, NC: Center for Adolescent Health & the Law, April 2003. This 200 page monograph summarizes each state's minor consent statutes, including the confidentiality and disclosure provisions of those statutes. Ordering information is available from info@cahl.org.
21. 45 C.F.R. § 164.502(g)(3)(i)(A).22. But be aware that even a minor who is legally entitled to consent to most health care on her own may have to comply with a law that requires parental or judicial involvement in her abortion decision.
23. 45 C.F.R. § 164.502(g)(3)(i)(B).24. 45 C.F.R. § 164.502(g)(3)(i)(C).
25. 45 C.F.R. § 164.502(g)(3)(ii)(A).26. 45 C.F.R. § 164.502(g)(3)(ii)(B).
27. 45 C.F.R. § 164.502(g)(3)(ii)(C); see also 67 Fed. Reg. 53,200-53,2001 (Aug. 14, 2002). 28. 45 C.F.R. § 164.502(g)(5).29. 45 C.F.R. § 164.512(b)(1)(ii); see also 45 C.F.R. § 164.512(c).
30. 45 C.F.R. § 164.524(a)(3)(iii).31. 45 C.F.R. § 164.524(d)(2).
32. 45 C.F.R. § 164.522(b).33. 45 C.F.R. § 164.522(a).
34. 45 C.F.R. § 164.512(j)(1)(i).
35. 45 C.F.R. § 164.520